Wednesday, July 29, 2009

Hematologist Report (on Holly's ongoing eye issue...)

Thank you again for taking the time to read about the latest on Holly's 6th cranial nerve palsy. Her vision is still the same. Still seeing truly double, and she is wearing some glasses we rigged up that block out the affected eye to help her function with the double vision.

We went to the hematologist at the request of the neurologist. The hematologist was really nice, seemed to really listen, and really knew his stuff. He looked at the blood work the neurologist ordered, but he didn't agree that the findings necessarily indicated the antiphospholipid antibody syndrome. He's familiar with that condition, and in his experience people that have it have higher numbers on their blood work. To confirm or deny the diagnosis, you have to wait six weeks between tests. So, Holly will have more blood work done the week of August 10th. He also said that he has treated a lot of people who have clotted as a result of birth control. Birth control enhances certain genetic tendencies of clotting. Most people only clot when they get older, but the birth control brings the clotting sooner. If there's no genetic issue, then the birth control is the culprit. He also wants to check her heart, because the heart can cause clotting. He doesn't really think it's either of those things, but he has to check it out. He did also say that when he's seen clotting as a result of birth control that it's normally in the leg. Holly's being in her brain is unusual.

So, we're still pretty much where we started. It's great news that he doesn't think it's the autoimmune disease. If that's confirmed by the next round of blood work, then she won't have to be on blood thinners. More waiting around and more praying that the 6th cranial nerve will regenerate so she can see. We'll give more information as we have it. Oh, and we seem to be really noticing how many verses there are about sight and blindness in Scripture. Pretty amazing.

We love you and cherish your prayers. Thank you for your support.

Jason, Holly, and Jacob


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